My Life With TBI

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What is TBI?  Traumatic brain injury (TBI), a form of acquired brain injury, occurs when a sudden trauma causes damage to the brain. TBI can result when the head suddenly and violently hits an object, or when an object pierces the skull and enters brain tissue.  Symptoms of a TBI can be mild, moderate, or severe, depending on the extent of the damage to the brain. A person with a mild TBI may remain conscious or may experience a loss of consciousness for a few seconds or minutes. Other symptoms of mild TBI include headache, confusion, lightheadedness, dizziness, blurred vision or tired eyes, ringing in the ears, bad taste in the mouth, fatigue or lethargy, a change in sleep patterns, behavioral or mood changes, and trouble with memory, concentration, attention, or thinking.  A person with a moderate or severe TBI may show these same symptoms, but may also have a headache that gets worse or does not go away, repeated vomiting or nausea, convulsions or seizures, an inability to awaken from sleep, dilation of one or both pupils of the eyes, slurred speech, weakness or numbness in the extremities, loss of coordination, and increased confusion, restlessness, or agitation.

  

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Hopelessness to Thriving Happiness

When my husband was diagnosed with traumatic brain injury (TBI), I had no ideas what he would need or how I would be able to provide it while also working and caring for our small children. I was completely overwhelmed, feeling completely lost.  I was trying to manage something I didn't know what it was to begin with.  I just knew I had to be strong, brave for my husband and our daughters.  What unfolded next was mind boggling; nearly indescribable series of demanding days and restless nights. I scrambled to find resources for myself, but all focus was on the needs of my husband.

 

What I really needed then, was someone like whom I have become.  Over time, I learned all that I needed to in order to support my husband and my daughters as we navigated these new waters. Today, I experience life with joy. I have created a routine, a style of communicating and a way of being that has allowed our family to live a harmonious, happy life.

I'm sharing my life with TBI in short videos, and I hope you will find some comfort that you are not alone living with TBI, and that there is a better way to live with TBI.